10 Things on Thursday: Reintroduction

It's been years since I kept this blog up regularly.  Crises in physical and mental health developed both for me and for family members and posting didn't seem important.  Or possible.

In the spirit of new beginnings, here are ten things to introduce myself to new, returning, or long-time readers:

1.  My hysterical illness finally got a few official and semi-official diagnoses, including Myalgic Encephalomyelitis,  Migraine and several other kinds of headaches, Ehlers-Danlos Syndrome, Fibromyalgia, Postural Orthostatic Tachycardia, Thyromegaly,  traumatic brain injury, Temporal-Mandibular Joint Syndrome, PTSD, and Dissociative Disorder.  There are probably a few others that have got overlooked.  For example, I'm fairly certain I have Sjrogren's Syndrome, Dysautonomia, and an autoimmune thyroid disorder.

2.  Medical professionals, conventional and holistic, have been uniformly unhelpful at best and downright damaging far too often. I've lost count of how many and what kinds of doctors I've seen.  I found the NAET therapist extremely helpful until we uncovered some deep trauma layers in my psyche and abruptly we were outside the therapist's comfort zone, although he refused to admit any such thing.  I stayed with him for months longer than I should have.  The Doctor of Oriental Medicine, who used acupuncture, reiki, and other energy modalities, did the most good, not especially curative but kept me alive and functioning while I slowly found my own healing protocols.  She was useful for acute care as well and I stayed with her for three years, only recently moving on. Her business partner, a chiropractor, was enormously helpful as well but less for her chiropractic than for her weird energy work--the name of which I never can remember.  Through her work, the bones in my skull and face shifted significantly, allowing some healing of nearly fifty year old injuries, and reducing TMJ and migraine symptoms a great deal.  I don't see her regularly anymore, only a few times a year for "tune-ups." My yoga teacher also facilitated a lot of healing simply by the kind of environment she created during Restorative and Yin classes.

3.  Surrendering to the illness rather than fighting against it has been an important and ongoing aspect of creating health, if not curing any disease.  Taking to my bed and staying there, admitting to myself and others when "normal" was beyond my capacity, learning to accept and live within the new limits allows me actually to accomplish a few things in a way that wasting all my energy on trying to be who and what I used to be could never do. Submitting to illness as a teacher, an agent of grace, rather than a demon to be destroyed, changes the whole paradigm.

4. Therapies and therapeutics that have produced real and sustainable curative results for me include shamanic journeying, homeopathic adrenal supplementation, constitutional homeopathy (self-prescribed, practitioners were not helpful), Low Dose Naltrexone, the Fuck It Diet, aggressive resting and following a heart-rate based exertion program, meditation and chanting, and Restorative and Nidra yoga.

5.  I am still committed to finding a place in the Christian community.  I still think in Christian.  Christian metaphor still resonates in my soul in a way no other tradition's stories or vocabulary does.  I will never be a conventional Christian, being a heretic is as much a part of me as being a Christian, maybe more.  I am, however, determined to forge or find a space to bring together the ancient traditions of Christianity with modern applications. We needn't be syncretic with Buddhism or neopaganism (such syncretism isn't wrong but isn't necessary) to find meditation, magic, mysticism, contemplation, or apotheosis.

6. To that end, between relapses last year, I began facilitating a chant class at my yoga studio.  I had to drop it last spring but I hope to revive it locally and in person as my health permits, online in podcasts or Skype groups if it does not (and even if it does).  Ideally, I'd like to be able to facilitate chant groups in hospitals and VA centers for the very ill, the disabled, the traumatized.  I see its importance for spiritual healing far outweighing its utility for the trendy yoga studio seeker.

7.  My kids have grown up since my earlier writing.  I'm no longer homeschooling except in the most legal and supervisory definition.  My older daughter chose to attend public high school, graduated with honors and moved across the country to go to a private liberal arts college where she continues to swim competitively and aims eventually to physical therapy school.  My younger daughter attends community college and is dual enrolled at cosmetology school.  I still supervise her registration, sign her enrollment forms, and help as requested with papers (dyslexia is still a challenge), but I am no longer directly involved.  She's also been a professional actor for several years.  It still seems strange to think that what was such a huge part of my life is now over, but I also heave a sigh of relief to be finished.  I don't regret it for an instant--and, thankfully, neither of my kids does either--but it was a lot of work for which I'm glad no longer to be responsible.

8.  Due to injury and illness,  I can no longer read books.  At least 95% of my reading is through the Kindle app on my iPhone.  While I am deeply grateful to have that option, since I dislike audio books, I miss the smell, the look, the feel of holding a book in my hands.  I miss shopping at used bookstores and trolling library stacks.  And I really hate paying the digital prices for books.  I thought I spent a lot of money on books until I started buying ebooks at retail prices--criminey!

9.  Chronic illness is isolating and annihilating.  Even for persons not housebound or confined to bed as I usually am, illness forces an identity change.  It demands consideration of existential questions of meaning, individual value, community, and purpose. Whether one faces these questions head on or ducks continuously to the side of them, they change a person. Chronic illness means facing one's death in a society that spends a great deal of effort to deny death.

10.  Writing this post taxed me so much, I can't even think of a number ten.  I'll just hit publish and have a little lie-down.

Trauma Therapy--Heavy Metal Style

A friend sent me a link to this song, thinking its story might find resonance with my story. He had no idea how right he was. Despite his trigger warning, I didn't expect how deeply into the buried recesses of my mind this song would reach.  I listened to it probably five times straight through before I could make myself quit hitting repeat.  Or, my hands were shaking so badly I couldn't press the button.  I didn't have the luxury of truly falling apart then. Ruthlessly shoving the response back into barely conscious places, I kept on with my week until I did have a few hours of uninterrupted time to allow the ripples of trauma to bubble up from their underground hiding places.

The migraines and gastric disruption that I had so recently learned how to (mostly) control came back and lingered despite my extra handfuls of pills.  Fatigue overtook me again no matter how early I went to bed.  Strange dreams echoed (barely) into my waking.  I needed to feel this song.  Hear this song.  Sing these lyrics. Scream these lyrics.

This song is mine, it owns me.  It cries the words I've never said, could never say.  It is the song of far too many, so many children grown to adult or even old age without the words to capture the ache in their souls. The smoldering coals of rage that lie waiting under the ashes of long burnt flame in so many hearts, branded on our bodies in chronic disease, mental disorder, addiction and social dysfunction.

This morning I put this video on constant replay for nearly two hours, until the shaking and nausea ended.  Even so, I was able to only barely more than whisper the words, though now they echo like a descant in the back of my mind. It still owns me.

I will sing this song, write this song, my story, until I own it.  Until I own it and can set it free.

Truth and Reconciliation: a Beginning

(reprinted with permission) 

 Dear Sandy, 

As I was eating my brunch just now, I couldn’t get your blog post out of my mind. I really didn’t try too hard, realizing that stuffing uncomfortable thoughts, images, memories is one of the things I tend to do.  I decided to reread it, now that I am straight on whose words these are—not some author whose book I’d read and with whom I felt a certain pain, but my daughter … whose pain over this I was not aware of for I don’t ever remember hearing of these events … unless these were among those thought, images, and memories that I stuffed because they were too uncomfortable for me to live with. 

When I first read the post before brunch, I was struck by your description: "Men, however, especially with a liter or two of lager in them, were delighted to ‘talk about love’. And to fondle me, grope my breasts, and press their leering, beery bodies close to mine.” I had felt revolt that these half-drunk slobs would do such things to Rachel.  But as I reread it, knowing this is you talking, I am more than revolted.  I was ready to punch them in their red, inebriated noses!  “That’s my young daughter your treating like less than a human being.  You are just that—less than a human being—to act that way!” 

Then, the thought entered my mind, “And how many times have I thought of such things, without acting on them?” That is all part of the patriarchal culture I was reared in, and which I am having one hell of a time pulling myself out of for it is so engrained in my as an integral part of psyche! 

The patriarchal home in which you were raised was more subtle than those half-drunks, but no less damaging. My therapist and I have talked about the fact that I was abused growing up by my mother—emotional incest—and that has the same lasting effects that sexual abuse does. Surely the attitudes, actions, words, innuendos, double entendres, and the like, that were evident as you were growing up, were equally as damaging to you. 

And when I think that I was as responsible for this part of your abuse as were those intoxicated guys, I more than cringe! I get equally angry. My only excuse: I didn’t know better. I was simply repeating what I had experienced in my home growing up with a father who had wanted to divorce my mother after having more than one affair … even as he actively took part in leading worship of our fundamentalist congregation. 

Obviously all this is well engrained, not something involving just your, mine, and my parents’ generations. It goes back to the beginning of the church, back to its Jewish roots. Women are property … playthings. Oh, I never heard it put so bluntly within the church. 

No wonder you did not talk to anyone about this? The men in leadership would have been more blind than I, and the women had been beaten into submission to men since they themselves were children. That’s the way it was (and still is in many places). Surely this price was not to much to pay so that one of those slobs on the streets of Dusseldorf could find the “joys” that you had found in being a Christian! Did the mission leadership have any idea what was going on out there on the streets? And if they did, were they at all aware of the horrible effect it was having on the young women and teenage girls they were sending into the brothel, as it were, to surrender their bodies and souls for Christ? 

If you had said anything (it is probably just as well you didn’t!), you’d not have been “given a place of safety and refuge in which to recover. There would have been no sense of the fact that you needed “a place of safety and refuge in which to recover.” If you had mentioned it to me—and if you did, I (like the leadership) unconsciously considered it too insignificant to deal with or even remember—I would have had no idea that you needed to be “given a place of safety and refuge in which to recover.” It would have all been off our radar screens; we would have seen you as less than dedicated. (God, did I really just write that about myself?) 

Oh, Sandy! What I’m experiencing as I read and write just now is so eye-opening.  And so horrifying. 

Ah, and when you realized you were being abused, you felt that you were cheating God by not being willing to sacrifice yourself—including sexually—on that so-called Christian altar. How often I’ve felt the same way, though not because I was sexually abused, just because I was not a good witness, I was not willing to die for Jesus.  And oh the shame that has grown within me. 

I have not resolved anything here, but I did not intend to.  I only want you to know that my eyes were opened if just a bit, that I’m willing to see some of your pain, that there is a new awareness of things relative to you, to the church, to patriarchal Christianity, to the homes you and I grew up in. 

All I can say is that I can pray for you as you enter your personal retreat next week, and I can pray with much more awareness than I could have an hour ago.  May the compassionate God meet you during your times of thought, meditation, relaxation, unburdening, and the like; may find healing. 

Sandy, my daughter, forgive me for all I have done, years ago and much more recently, out of utter ignorance and blindness. I love you.  I cry with you. 

Dad

10 Things on Thursday

I am planning a solitary DIY retreat for the last week in April.  Here are ten things for my portable altar:

1.  An alter cloth (that will double as a head scarf when I am out in the sun)

2.  A few tea light candles

3.  A lighter

4.  A small abalone shell to hold the candle

5.  A found shell that reminds me of half a wing as a meditative focus

6.  A bag of Dead Sea salts

7.  A flask of whiskey (yeah, not really this one)

8.  Heretic Anointing Oil (my own blend that a local store makes up for me)

9.  A collection of prayers

10. A rose petal/white sage smudge bundle

Living in the And

Lent has traditionally been understood as a preparatory time before Easter to participate in the sacrifices of Christ by making some difficult sacrifices of your own--usually involving some kind of fasting (no meat, no fats/oils, no sweets, hence the over the top revels of Fat Tuesday to mark the end of Mardi Gras--literally Fat Tuesday--with the sweet and fatty foods) as well as something unique to the penitent that is given up. By entering into the sacrificial postures, it is supposed to make you more aware of how much more Christ gave up to descend to humanity and be killed on your behalf.

I am not a substitutionary atonement adherent and don't observe Lent with those purposes. I see the death and resurrection of Christ as just another variation of the many springtime renewal stories. Every tradition has something that honors the Life Cycle springing forth at this time of year. Whether it is a Pagan celebration of Earth Day, Chinese New Year, Passover/Easter, everyone has some ritual of honoring that which died in order to generate the new life that sustains us through the coming year.

For me, personally, I am looking at the death of who I was (more accurately, who I thought I was) and the rebirth of myself into who I am becoming. It is a time every year when I consciously try to let go of habits of thought and pre-conceived ideas about who I am, of what I think the world is, of How Things Are. The Lenten period marks a space between the worlds, a gestation as it were between What Was and What Is. Yogis talk often about the Space Between the Breaths. a little death in the middle of the breathing that sustains us. Enlightenment, they say, is to be found in the Space Between, in the And of in-and-out. 

For me, Lent is a conscious Space Between last year and next year. It is living in the And. Recognizing a space between Ending what came before and Beginning the rest of my life.Therefore I take up practices for the Lenten season that will provoke my thinking into that death-and-resurrection, rest-and-renewal, sort of focus. Usually some form of meditation, some form of giving-up, some form of service, or all three.This year I'm attempting all three: a fairly rigorous dietary restriction for the purpose of clearing my mind and entering the hidden depths of repressed memories and emotions, a meditation on my old journals and (unexpectedly) the New Testament book of James, and a creative service by participating in the Religion-Free Bible Project and (hopefully) getting my Heretic blogging back up and running.

It is a hefty undertaking. More than I have attempted before. Given my health ups-and-downs (mostly downs) I don't know how much of my To-Do list will get done. But the honor is in the attempt, in the being willing to place myself in the space, to submit to the process, rather than the perfect execution of the tasks.

A Parable of Forgiveness

Once there was a very old man who lived next door to me.  He'd lived there forever; I'd grown up with his children, and his wife was my confidant.  Long after I grew up,  I moved back into the old house to raise my own children.  He was still next door.

After living some years as friendly neighbors, sharing rakes and shovels and plates of Christmas cookies, I discovered that he had taken something from my garage.  Something that had been there from my own childhood, just some old junk of my grandma's, probably only worth ten bucks at a garage sale. It's value to me was mostly that it had belonged to my family for three generation. But still, he'd just come over and taken it.

I confronted the old man.  He sorrowfully professed his apologies but said the item had since broken and he'd thrown it out; there was no returning it.  I was vastly annoyed and wanted little to do with him after that, though still being close with his wife, I had to swallow my irritation and make nice.

Another while passed and my children began watching one of those antiques shows on television where people sell their attic-finds for pennies or fortunes.  They discovered that the item the old man had stolen was not worth the mere ten dollars I'd imagined but was being bought by collectors for a thousand dollars.  I began to doubt that grandma's junk had so conveniently broken as the old man had claimed.

My anger and resentment of the old man grew.  Bitterness galled in my belly when I saw him in his yard.  My relationship with his wife withered.  I realized that I had to forgive him for my own sake, if not for his.  I told myself that I hadn't lost anymore than when I was unaware of the actual monetary value of grandma's piece.  It was simply a bit of family history and I still had my memories of grandma, after all.  It took a long time of inhaling So and exhaling Hum, of praying for peace and seeking to see the divine in the old man.  But finally, I could smile at him and actually mean it.

Eventually, the old man's wife became ill and died.  My family and I went over to help him sort out his belongings and close up his house before he moved in with his daughter.  I found a note addressed to me in his wife's handwriting, wavering and spotty, clearly written just before her death.

The note revealed that in her last days, the old man had confessed to her.  For decades he had been breaking into my house and systematically stealing my grandmother's treasures.  After emptying the storage boxes in the garage, he decimated the long neglected attic.  He'd even brought in knock-offs to replace the valuable antiques he stole from the main house.  My beloved family heirlooms, the tangible bits of long ago memories, the irreplaceable things I'd so adored because I thought they held the imprint of my grandma's touch were all cheap fakes.  The dead woman guessed that the old man had sold my belongings for hundreds of thousands of dollars, at least a half a million, probably more.  She'd thought he'd been fortunate at his online trading, when in fact, his trades had been disastrous and it was the sale of my own goods that had kept the two of them out of financial disaster many times.

I was shocked into immobility while my mind raced.  What good had been all the work I'd put into forgiving him for the one theft I'd known about?  Had his apology that I'd struggled so to accept had any value at all? Could he possibly have had any repentance for the one when he still continued with the other?  Was my hard-won forgiveness worth anything at all in the face of this deeper and infinitely more personal violation?

Worse than the loss of the material goods he'd stolen was the sense that his theft had been from my soul.  He'd stolen forgiveness from me with his fraudulent apology, capitalizing on my own inner belief in turning the other cheek.  I wished I'd never wasted any effort at all on the struggle to forgive him for his now-petty crime.  I wished I'd built up the wall between our houses, cut off relations with his wife, guarded myself from his thievery.  He'd manipulated my goodness and his wife's to serve his own greed.  He'd exploited my trust to cover his poor judgement in stocks.  His rape of my innocence tainted even the memories his false heirlooms once inspired. I couldn't even think of my grandma without being ripped off by him all over again.

I doubted that all the novenas, all the so hums, all the praying in the world could ever give me the grace to forgive the old man again.

Preparation for a Prayer

Last spring, as I approached a particular NAET treatment, I became inexplicably anxious. I looked for ways to procrastinate, postponing appointments, finding other things that just needed to be treated first, forgetting to do the necessary preparatory work. The morning of the treatment, I awoke from a dream that my father had had sex with me. It was repulsive: his casual use of me. I went into my healer's room shaking with a fear I couldn't explain.

During the treatment, I had a conversation with my dead mother that, by midnight that night, indicated to me the depravity of the sexual abuse of my childhood and adolescence. I began to think I had repressed memories far beyond the few incidents that I could recall. It was a realization that tipped the axis of my identity sideways.

The apprehension with which I'd gone in for the treatment began to make sense.

Tomorrrow morning, at the height of the full moon eclipse, and some conjunction of Venus and Pluto that my astrologer assures me is auspicious, I will perform a purification and initiation ritual. My intention is to strip away the denial and repression that keeps me from realizing my spiritual potential, to purify my vision, and to commit myself to my life's calling more deeply, though I will not know really what that is until the blinders fall away from my inner sight. It is a step of faith, fidelity to the path, because I know that the rigors of vocation will be more than I can imagine at this point.

The trepidation that wavered into total terror, then rushed headlong into stunned horror, that accompanied last spring's NAET treatment also finds me now as I prepare for this coming ritual. What knowledge am I about to face? To what life am I committing myself?

The ceremony itself is little more than minor theater with fire and salt, psychological smoke and mirrors. But psychologist-priest that I am, I know the power of theater to give life to the soul. It is a powerful statement of faith, of my willingness to follow a calling I've denied my whole life.

It is that commitment I fear. What if it is too hard? What will it cost me? It will, of course, cost me everything I have. That is what callings are. They demand your life, one way or another.

This ritual is a declaration that I am willing to meet that price. I will follow the truth that is yet to be revealed, lead where it will, cost what it may.

I shake with reverent fear, holy terror, and determination. The demon in my head, who is not yet convinced that this is grace, screams in pain. A door is opening into new depths and the migrainous screeching of its hinges alerts me to the potential horrors lurking within. Do I really want to enter? How can I not and hope to live with myself?

Would that this cup should pass from me. But be it not my will, but Thine.

A Haunting

Halloween. The veil between the worlds of spirit and body wavers and thins.  Knowledge and fear of knowledge, consciousness of The Unknown, are close at hand.  Ghosts walk, demons dance, all the skeletons in the closet rattle.  I am tense with horror at what I am about to call up, at my own deadly courage in facing the shade that hovers.   

A year ago, I was lying here in my bed, weeping again from exhaustion.  It was 7pm, the trick-or-treaters were in full parade.  One daughter was downstairs dispensing candy to the crowds and laughing with the neighbors; the other daughter pacing the floor, waiting for a ride to a party who never showed up. I was so tired, fatigued from my hysterical illness, the six weeks of continuous bleeding, the runaround in the health-care system.  I drove my daughter to her party, shaking like a palsied old woman.  Three hours from now, I was checking into the Emergency Hospital.

A year of doctors and tests that told no story, of healers and pills and therapies that dug new stories out of the depths of lost memory.  I lost forty pounds; it all found me again and brought extra.  I've been to a dozen doctors. I've consulted astrologers, psychics, and charlatans.  I've been hopeful and morose, resigned, and suicidal.  I spent thousands of dollars and hundreds of hours in analysis, diagnosis, meditation--scouring my case history for clues, making peace with skeletons in my past, finding skeletons lurking that I never suspected.

Last Christmas I lay in my bed, wishing I were dead.  Lent came around to find me hopeful of a resurrection into new life, a renewed spirit.  I wondered what would grow from my broken body and bruised heart.  Grace had cracked open my life, deeper than I imagined possible.  The self I laid down is dead; the self that rises now, I still don't recognize.

Not two weeks after my Lenten post, I lay on my healer's table, confronting my long-dead mother.  More than one of my sensitive friends told me that I had an attachment, that the ghosts of uneasy souls lay in my spirit.  My mother appeared to me with remorse, anxiety and longing.  Death had given her a new perspective of our lives.  She begged my forgiveness for her sins.  She warned me of demons hiding in my psyche.  She gave me few words but what she said turned everything I remembered of my childhood upside down.

It felt like my memories, and the meanings I attached to them, were a kaleidoscope, a familiar pattern of sights and sounds and feelings.  But Mom came and shifted the lens just a quarter turn.  All those  pieces suddenly fell into a different pattern with all new meaning.  Everything I thought I understood about myself, my childhood, my family was new.  I had stepped into a parallel universe, a Twilight Zone.

But how could these implications of my mother's words be true?  I had no recollection of anything that supported what she suggested that day. I was haunted now as I'd never been when her spirit had lingered.  I'd watched her fade into the light of my healer's window but I was burdened now with a new, terrible truth I couldn't accept.

My lack of confirmation weighed heavy, though the scars of the truth were now clear.  I felt like a physicist who hadn't seen the unknown planet but knew it had to exist because of its effects on nearby space were obvious.  Suddenly, the many questions through the years from psychologists and psychics weren't so absurd.  Perhaps the wounds they suggested had happened.

Then the memories began to leak out.  In dreams.  And flashbacks.  Glimpses of sights and sensations that had no context but I could feel them in my body, gagging me, tearing my most sensitive places, burning my belly, the gall strong.The demon danced always just out of sight, daring me to call him by name.

My body is the battleground of this fight to own my memories.  I was struck with Bell's palsy; I lost part of the vision in one eye, and have been tortured with pain that threatened to blast my brain out through the sutures of my skull bones.  The medicines and therapies prescribed to lessen the pain, served also to weaken my defenses that blocked these memories to begin with.  The more I mediate the pain, the more the demon dances and, by force of long and well-ingrained habit, I try to repress him.  I am about to start my third round of remedy/therapy combinations that will safely exorcise this evil from me.

I long to name this demon with confidence.  Fetch him to dance to my tune.  Tame him to work for me in healing, not destroy me.  As I write, a muscle under my eye is twitching, my whole body aches in a permanent flinch, the frozen trauma caught in the muscle memory I can't yet allow fully into consciousness.  

Tonight I step into the circle, howling my terror, singing my strength, this demon is mine.  Bring to consciousness the fears and the memories that terrify. While the veil to the unconscious is thin and shifting, when the power of those saints who passed before us lingers close, I invoke Grace.  The demon Grace who dances, not to terrify but to save me from what I could not be permitted to see.  Grace, whose blindness now will be sight, I call you to transmute from fear to love, no longer Death but Life.  

Tomorrow, I go to a Franciscan labyrinth to honor All Saints Day/Dia de los Muertes.  I will walk into the path as to the grave, to bury my fears and traumas.  The dreams and knowings I call forth tonight will go with me tomorrow into the labyrinth. I will bring the demon fears with me, but in the holy center space where grace happens, he will be no demon to me. When I come out, it will be wisdom that walks with me.  

Self-Denial

[comment] ...what I am seeing in facilitating of the [Sunday School] classes on Buddhism, as well as the ongoing study of Ephesians, is that they are both saying the same thing: life here hurts, but it is possible to some extent to transcend the pain (dukkha) of this life and find enlightenment and freedom, even while enduring the pain.  From what I see from the Buddha, the pain is intensified as we focus on ourselves (tanha), but it dissipates as we—to use Christ’s term—deny ourselves (anatta), a concept that is not easy to explain; I’m not sure what “no self” (the usual translation of anatta) means.
               We talked in the Ephesians class yesterday about the martyrs, who were burned at the stake, and sang hymns until they could no longer breathe.  Sure, they were in severe pain, but there was something else going on for these mystic martyrs. 
               Well, I did not mean to preach [about your ongoing chronic illness], and I don’t intend that you say, “Aha, that’s what it’s all about!”  These thoughts are nothing new to you; you undoubtedly know more about them than I do.  I relate them simply because I was reminded of the tie-in. 

Illness pulls one’s focus inward.  Anyone with a sick child, or the stereotypical sick husband, knows that there is nothing like illness to make a person self-centered, completely uncaring about anything other than the miserable experience in his own body.  One of the first signs of recovery in acute disease is when the patient’s attention turns again outward.  A minor illness makes people cranky, a more serious one takes them right past cranky into sullen and distant, turned so inward that all interventions are mere nuisance.  As healing happens and the patient returns to an outward enough consciousness to be a grouch, the nursing staff breathes a sigh of relief (at least initially).  And as recuperation continues, the child once again clamors out of bed to run and play, the husband heads back to work—both a return to the outer world.

We are at ease when our Selves are able to expand into community.  Dis-ease occurs when we are contracted too far into our individual existence.  Religions of all kinds tell us that spiritual health is when we can expand our self so far outward that we merge with the community—when we lose the self to gain Christ, or attain the No Self.  We all live on this continuum of individual ego, moving from points of solidified ego consciousness, selfishness, complete inward focus, to points of community, spiritual unity, dissolution of ego consciousness, and back.  It is a dynamic continuum and we are always shifting our position.

Like all continua, the endpoints are not opposites but meet up as in a circle.  One can lose ego boundaries in pathology, just as one can look inward beyond the Self to find a Higher Consciousness.  In an unexpected turn of the wheel, this hysterical illness of mine has served to bring me from a place of ignorant spiritual disease to a place of greater spiritual health.  Although I thought I was psychologically healthy, spiritual aware, before the onset of this illness, actually I was lost.  Lost in externals, my boundaries defined not by a healthy ego but by demands from society, ideology, family, I participated in the rat race of parenting, homeschooling, career planning, never realizing that my actions were dictated by influences outside my Self.  I lost myself in trying to be the best crunchy granola mom in the homeschool group.  I defined myself by how well I followed all the rules—eating the most organic, local foods, buying only natural hand-made toys, making my own medicines and condiments and cheese (okay, I really failed at cheese)—rather than by internal standards of compassion and grace.  Everything I did, no matter how well intentioned I had thought it, happened because I sacrificed myself to my family’s perfection.  My own boundaries were much too porous; I didn’t know where the external demands of family and culture stopped and I began.  I identified myself by my ability to exist for others. It was a pathological lack of ego structure.

And I burnt out.  My adrenals quit supporting all the demands I put on myself.  For two years, I was crazy, neurotic, more than a little psychotic at times.  I lost even the illusion that I had a Self.  In moments of lucidity, I found a name for this physiology—hypoadrenia, probably Addison’s disease if I’d found a doctor who took me seriously enough to test it back then—and worked very hard at recovery. 

I was pretty successful. I got healthy enough to think about employment, or maybe taking up my education again.  But I had only addressed the physiology of my disease.  I was still identifying myself by what I could do—become a doctor, homeschool my kids, cook a damn fine meal—rather than what I was.  My Self was still lost, dissolved in the expectations from family and culture.

Regaining a healthy Self required me to pull inward, define myself by internal standards, even develop those standards by which to define myself.  Illness demanded that I look inward.  Particularly illness that didn’t go away.  I couldn’t simply grit my way to the end, wait out the fever or the cough—though I tried to “just hang on”.  As month after month became year after year, and I could do less and less of the work that I took such enjoyment (and pride and identity) from, I have been forced to reconsider my boundaries.  As I have to tell my kids, myself, “no” again and again for even the most commonplace of demands—grocery shopping, staying functional through a whole play or swim meet, snuggling on the couch—I learned that my Self is not defined by these things.  My Self, I, am stronger and steadier, more secure, now in this chronic debilitation than I ever was in my “healthy” before-illness state. Even in my bitchy, bitter, weariness.

Is this the grace? The transformation of the mud into the flesh that holds Life?  The breath that gives life, that sings through death?

A Note to a Friend

 My overall reaction to my trip to see you last week is centered around the fact that you moved from your bed to my car to the restaurant and back again.  You had said how tired and lethargic you were when we have "talked" by e-mail, but to observe your lack of energy showed me how devastating and debilitating it has become for you.

Yep, bed…that’s pretty much where I’ve lived for the last 14 months.  I get up to go to coffee or the doctor or to drive the kids to something and go right back to laying on the bed.  Even hanging out on the couch has become too much since I have to argue for the space where I can stretch out and rest my head, fight with the family over light/noise/choice of television programming/clutter/dust-pet-hair, and so on.  My bed has become my sanctuary and my prison. 

My internet connection is my window to the world; Facebook is my social arena.  I can choose when and how I converse or if. When it gets too much, I can just not participate and it’s okay. For a month or so in January/February, I had a few really marvelous weeks when I was able to shop and cook and feel like a real human being not just play one on the internet.  But then in March I had some psychological stuff happen in an NAET session that really walloped me and it has been a loooong slow road back again.  In just about every possible way, I feel as sick as I was in December.  And that was really bad! 

 I pray you will find whatever it is—physically, psychologically, spiritually—that is getting the best of you; or that with or without that knowledge, you will find the means (homeopathic or otherwise, by yourself or with the help of professionals) to overcome what's been ailing you.  I sense that there must be an answer to this thing, and that you or someone else will be able to find it.  (Whatever you do, don't give up.) 

My healing partner says I can’t give up—as in suicide—because the curse of my condition is that it would take more energy than I have to kill myself.  Sigh.  Yeah.   More often than I can count, I’ve prayed for the energy to die.  Because living so isolated from anyone who actually believes I am sick and not just lazy crazy or stupid, so incapable of doing anything that makes me feel alive, so fucking tired in body, mind, and spirit, is not a life worth living. 

I know I have a purpose, a mission from God, but I feel much like Moses.  …it was Moses? Not Aaron?  Who had the speech impediment and felt unqualified to speak for God?  … I have this mission, and I even know what it is, but my self understanding is so lame, I cannot (will not) see that I can do the work.  And the harder I try, the less I can do.  My brain simply stalls as soon as I begin to think maybe I can do this. 

And, sure, there is that faith thing. If God has given you a task, he will surely equip you for it, right? So I must simply be faithful to the mission, fidelity is everything.  Except I can’t.  I literally lay here with my fingers poised over the keyboard and my mind freezes up—I can’t remember a single thing to write, I lose my words so badly I can’t complete a sentence even when I can remember my theme. Or I simply wear out and can’t even muster the physical energy to pull the laptop open on my belly here in bed.  

Lord, I believe, help thou mine unbelief.

A Glimpse of Normal

On the Feast of the Epiphany, I began treatment with a new healer.  By the end of last year, after slogging from doctor to doctor to doctor for my bleeding and other health issues, I was incredibly frustrated, exhausted, and desperate.  The dysfunctional bleeding finally stopped on Christmas Eve after my having bled for about 70 of the previous 95 days. After lots of testing, not very much listening, and quite a bit of passing responsibility to other practitioners, the best the medical profession could diagnose me with was pre-menopausal hormone disruption and being “as good as diabetic”.  Neither of which could begin to account fully for my last four and a half years of chronic fatigue, pain, and cognitive dysfunction.  I was grasping at straws, including paying good money for some online, unlicensed and barely legal naturopath who suggested about ten different diagnoses and told me that if I’d lose a hundred pounds (going to a fat farm if necessary), all my health problems would get better.  Note:  I do NOT carry a hundred pounds of excess weight on my body!

Over the holidays, which were horrible and mostly spent in bed, I stopped in at a nearby gluten-free store and found a single business card for a guy who practices acupuncture, applied kinesiology, and NAET.  I thought, “what the hell, I’ve been to everyone else, maybe this guy will think more like I do; he certainly has the credentials for Weird.”  He works out of his living room, sets up his schedule from his cell phone, and was willing to let me grill him on his philosophy of healing for twenty minutes before even making an appointment!  My kind of practitioner.  My first visit was on the Epiphany, which I thought apropos for beginning new directions in healing wisdom.

He let me talk for an hour and a half, telling my story, letting me say for myself what was wrong with me.  That in itself was worth his fee!  I came home feeling very much like I’d hired a team player rather than submitted myself to yet another person’s expert opinions.  That first visit I got nothing more than a formula of Bach flower remedies from the healer and I myself changed the delivery system of my homeopathic remedy but for the first time in over six months I didn’t have to spend most of my waking hours in bed (or desperately wishing I were). 

I was able to do all our grocery shopping by myself, a full restocking of the kitchen since my husband has been trying to keep things running for the last several months, not his forte.  I hadn’t been able to shop unaccompanied in years.  Before I had quit altogether, I’d had to take a kid and use the motorized wheelchair carts and now suddenly I had the physical stamina and mental clarity to plan and execute a shopping trip to three stores, put it all away, and then start cooking up a storm.  I cooked for that whole first weekend!  I hadn’t so much as made a complete meal for myself in months, much less whole family dinners and prep-ahead meals for the freezer. 

I lost another fifteen pounds in addition to the twenty I’d already lost by going mostly grain-free and low-carb.  My clothes are falling off me, I have to wear my wedding ring on another finger, I even had to go back to an old pair of glasses because the prescription for my visual acuity changed.  I was able to take my daughter to an open house at the technical school she hopes to attend and the same day go with my other daughter to her music competition, unthinkable even a few weeks before.  I attended swim meets, went to a movie with the family, and I’ve even gone clothes shopping for my ever-taller teens.  I felt normal, healthy, and capable of living the life I expected of myself for the first time in five years. 

And then the honeymoon ended.  The healer and I have begun a course of treatments designed to realign that nexus between the physiological autonomic nervous system and the spirit/psyche, to cause it to function harmoniously as one whole rather than acrimoniously as two separate aspects of Being.  The treatments reset unconscious beliefs that cause adverse physiological or psychological reactions.  The treatments themselves are innocuous—some holding of tiny vials of liquid, some thumping along the spine, and a little acupuncture—but the changes that occur afterwards are enormous.  The healing is deep and requires a lot of forebearance as issues come to consciousness to be released.  I am again tired and quickly fatigue, often lose my temper, and am forgetful or foggy.  But it is the tiredness of healing rather than the weariness of disease. 

That brief interlude of glorious health, that glimpse of normal, was a splash of grace.  Having experienced that two weeks, I can eagerly accept the challenge now of this healing work.  It was a foretaste of vibrancy that was sorely needed after these long years of increasing despondency and resignation, a reminder of what I can be, the impetus I needed to do the work remaining, allowing these treatments to dig deeply into the foundations of my Being and to rebuild my whole self from the very inmost soul-depths.

Another Ash Wednesday

Another Ash Wednesday.  Another Lent. Another season in the liturgical year to contemplate “what does it all mean” and “how do I live like it means anything at all?”  No matter what Jesus’s followers thought he was all about—and the Gospels record their opinions as all over the map—the events of that fateful Passover had to have taken them by surprise.  Whatever their expectations for the Jesus movement, his execution for criminal sedition was a big game-changer.  Who could have foreseen such an event? (Arguably Jesus, but if so, he didn’t seem to go about making it very clear to even his closest followers.) And having seen their leader die ignominiously, what were they to make of it?  In order to go on with their own lives, how were they to integrate his death into their own personal histories as a meaningful event? 

Eventually, the various atonement doctrines, revisionist messianic prophecies, and the deification of Jesus by the increasingly political church provided catechistic answers to these hard questions.  Ultimately, though, we each have to answer that question of meaning for ourselves just as the original followers grappled with it in the first century.  Each of us must find our own meaning in life regardless of what answers are served up to us by church or culture. 

Lent is a six-week period designed to reflect on what meaning we will give our lives. Two years ago, I began The Chronicles as a Lenten exercise, expecting 40-Days-to-a-Renewed-You.  What I got was a continuing odyssey in spiritual death and resurrection.  I thought that February of 2010 that I was nearly recovered from my then two-and-a-half year struggle with dysautonomia/adrenal dysfunction.  Little did I know I was only beginning a whole new adventure in chronic disease and spiritual health!  Like the first disciples, who could have foreseen how often in the last two years I would beg that this cup should pass from me, how many times I cried out from the depths of my soul for the God who had forsaken me, how close I would come to sighing simply, “it is finished.”

This sojourn in my personal Abyss has been more malevolent than I ever expected, the skeletons in my closet became demons that nearly destroyed my soul.  Not for lack of willingness on my part did they fail; more times than I can count, I pleaded just to die and to let the inner struggle cease.  But God kept waking me up to one more dawn; weep though I did at yet another day of hauling my weary, aching, broken self out of bed.  Grace is a terrible thing.

Lent has come around again. Why am I still here?  What is my purpose in continuing to breathe, to think, to move?  In the last few weeks I have been slowly resurrecting from the ashes of my old dead self, why do I live?  Grace transforms, whether we will or no.  What has grace wrought?  Like those devastated survivors of that crucial crucifixion, I look around me and begin to pick up the pieces of myself that I find and discover that they fit together differently that before.  I am not the same person who went into this grave, who is this new person Grace has borne?

Jesus’s followers began their fateful journey, leaving every part of the lives they knew in Galilee, traveling to another country for a religious celebration, only to find that everything on which they had staked they hopes and dreams was staked instead to a cross as a common criminal. Their lives, their plans, lay destroyed at the foot of the cross that scattered them to the winds.  Grace transformed those shattered people into a force that changed (for good as well as evil) the course of history.  What will Grace make of me? 

Lent. Six weeks to nurture the new healing, the tender green spirit that has sprung new roots into the Ground of my Being.  Forty days to reach for the light, to burrow into the ground.  Who will emerge from the seed of the resurrection?

Big Lies I Believe

Fundamental beliefs (aka Big Lies) held in common by people who suffer from chronic illness:

1.     I have to be strong. (Strong enough to handle anything, regardless of whether the weight is unbearable by anyone.)

2.     It is not right for me to be angry. (I have no right to anger, my anger is not justified, or even that anger is a sin akin to murder.)

3.     If I’m angry, I will not be loveable. (Love and acceptance are earned by our character or our behaviors—which are inseparable.)

4.     I’m responsible for the whole world. (Leading to hyper-controlling behaviors, being the Fixer, a compulsion to “save the world.”)

5.     I can handle anything. (It is easier just to do it myself than get other people to do it, if you want it done “right” you have to do it yourself, needing to be perfectly competent in all areas of life—perfect mom, perfectly decorated and kept house, perfect garden, perfect on the job, in the bedroom, in the ministry—being good enough is never acceptable in anything.)

6.     I’m not wanted—I’m not lovable. (Regardless of others’ intentions, I perceive that I am unwanted/unloved.)

7.     I don’t exist unless I do something.  I must justify my existence.  (My only worth lies in my utility.  I cannot fathom being valuable simple for Being.)

8.     I have to be very ill to deserve being taken care of.  (I should be able to buck up, mind-over-matter, just get on with things, no matte what.)

A major contributor to the genesis of many diseases… is an overload of stress induced by unconscious beliefs.  If we would heal, it is essential to being the painfully incremental task of reversing the biology of belief we adopted very early in life.  Whatever external treatment is administered, the healing agent lies within.  The internal milieu must be changed.  To find health, and to know it fully, necessitates a quest, a journey to the center of our own biology of belief.  That means rethinking and recognizing—re-cognizing: literally, to “know again”—in our lives.

…The key to healing is the individual’s active, free and informed choice.  … Liberation from oppressive and stressful external circumstances is essential, but that is only possible if we first liberate ourselves from the tyranny of our ingrained biology of belief.

From When the Body Says No by Gabor Mate, MD (the parenthetical remarks are my own)

Day of the Dead

Partied down with the ER docs last night. I went as a middle-aged woman with dysfunctional bleeding. It was a heart-pounding, dizzying experience. My costume rocked! Risque cutaways at the bust and booty, super realistic-looking blood on everything. I got some drugs and spent a lot of time on my back with my feet in the air while men toyed with my ladyparts. I even got to bring home pictures. Best Halloween party I ever went to but this morning after kinda sucks!

Ha!  The backstory is that I’ve been spotting or bleeding for nearly six weeks.  While each burst of actual bleeding was accompanied by extreme anxiety, I knew that I wasn’t bleeding anything like a hemorrhage so I tried to breathe deeply. Compounding the panic was the memory of my mom’s odyssey with cancer that started with exactly the same symptoms at exactly my age.  She was dead two years later.

I tried some of my own healing arts but found that I couldn’t concentrate through the anxiety.  Not surprisingly, my efforts were ineffective.  Last week I started a round of visits to conventional medical professionals—I posted some of that story on my Facebook Page.  None of the medicos wanted responsibility for my long term care: the GP sent me to a gynecologist, after ordering a raft of blood tests and radiology; the gynecologist insisted that I needed to follow up with the GP, after ordering more tests, because they “only do vaginas and babies here” and clearly I had bigger issues going on. 

The ob-gyn did prescribe some Provera (synthetic progesterone, the hormone that down-regulates menstrual bleeding among other things) to shut of the faucet, as it were.  Being the crunchy granola, nuts and berries kinda gal I am, I asked for natural progesterone but she never studied the natural stuff and didn’t know what it would do.  I agreed to take the Provera after a two-day trial of over-the-counter progesterone, though I would rather have taken a prescription compound that was regulated for potency, if the progesterone didn’t do the trick.

It did seem to work fairly well—if I didn’t eat or ingest anything that inflamed the ongoing allergic cough I’ve had for weeks, or do too much (since hubby was out of town, as usual, it was hard not to overdo)—until Saturday, when it didn’t.  So I trotted off to the pharmacy only to discover that the script never arrived!  Argh!  I called the doc yesterday morning to have it called in again but couldn’t pick it up until evening.  I planned to start it this morning after the hormone cream I’d been using all day had worn off. 

Just before five in the afternoon, I heard from the GP’s office that my bloodwork, ultrasound, and x-ray had all come back normal; everything seemed fine (!?!) But about nine o’clock last night, the bleeding switch turned on overdrive and I started to bleed quite heavily.  By ten-thirty, I was checking into the Emergency Hospital.  They were so quick and efficient, I didn’t even have time to make the necessary Mom arrangements.  I ended up phoning and texting my daughter at her party, my husband in Indiana, and other moms to pick up my slack, all while lying on the gurney with my feet in stirrups or being briskly wheeled around the halls (wow, talk about dizzying!)

Of course, the ER ran their own blood workup and ultrasound but their results agreed with the GP.  Nothing obvious to be causing the bleed—which, while heavy, was becoming clear was not nearly the dangerous state I feared.  So they watched me take the Provera that the ob-gyn had prescribed and sent me home.  Within a couple hours, the drug did its thing and dried everything pretty much right up.

Now that major polyps, tumors, giant fibroids, etc, have all been ruled out, I have a couple more tests scheduled: still to come, endometrial biopsy for cancer and something long and painful for fibroids not otherwise visible on ultrasound. But it is looking like a hormonal disruption consistent with incipient menopause—also consistent with the autonomic nervous system dysfunction that I can’t get anyone to notice. 

Meanwhile, on this the Day of the Dead, I feel hung-over, exhausted, and used up.  I feel beat up on the inside, weak and helpless on the outside.  Getting out of bed to use the toilet seemed more effort than it was worth.  In the last couple hours, though, I have been able to scramble some eggs, shower off my Halloween party residue, and crash back into bed.  Had enough energy to write this post but I feel a nap coming on now!