Showing posts with label hysterical illness. Show all posts
Showing posts with label hysterical illness. Show all posts

Thursday, November 19, 2015

10 Things on Thursday: Reintroduction

It's been years since I kept this blog up regularly.  Crises in physical and mental health developed both for me and for family members and posting didn't seem important.  Or possible.

In the spirit of new beginnings, here are ten things to introduce myself to new, returning, or long-time readers:

1.  My hysterical illness finally got a few official and semi-official diagnoses, including Myalgic Encephalomyelitis,  Migraine and several other kinds of headaches, Ehlers-Danlos Syndrome, Fibromyalgia, Postural Orthostatic Tachycardia, Thyromegaly,  traumatic brain injury, Temporal-Mandibular Joint Syndrome, PTSD, and Dissociative Disorder.  There are probably a few others that have got overlooked.  For example, I'm fairly certain I have Sjrogren's Syndrome, Dysautonomia, and an autoimmune thyroid disorder.

2.  Medical professionals, conventional and holistic, have been uniformly unhelpful at best and downright damaging far too often. I've lost count of how many and what kinds of doctors I've seen.  I found the NAET therapist extremely helpful until we uncovered some deep trauma layers in my psyche and abruptly we were outside the therapist's comfort zone, although he refused to admit any such thing.  I stayed with him for months longer than I should have.  The Doctor of Oriental Medicine, who used acupuncture, reiki, and other energy modalities, did the most good, not especially curative but kept me alive and functioning while I slowly found my own healing protocols.  She was useful for acute care as well and I stayed with her for three years, only recently moving on. Her business partner, a chiropractor, was enormously helpful as well but less for her chiropractic than for her weird energy work--the name of which I never can remember.  Through her work, the bones in my skull and face shifted significantly, allowing some healing of nearly fifty year old injuries, and reducing TMJ and migraine symptoms a great deal.  I don't see her regularly anymore, only a few times a year for "tune-ups." My yoga teacher also facilitated a lot of healing simply by the kind of environment she created during Restorative and Yin classes.

3.  Surrendering to the illness rather than fighting against it has been an important and ongoing aspect of creating health, if not curing any disease.  Taking to my bed and staying there, admitting to myself and others when "normal" was beyond my capacity, learning to accept and live within the new limits allows me actually to accomplish a few things in a way that wasting all my energy on trying to be who and what I used to be could never do. Submitting to illness as a teacher, an agent of grace, rather than a demon to be destroyed, changes the whole paradigm.

4. Therapies and therapeutics that have produced real and sustainable curative results for me include shamanic journeying, homeopathic adrenal supplementation, constitutional homeopathy (self-prescribed, practitioners were not helpful), Low Dose Naltrexone, the Fuck It Diet, aggressive resting and following a heart-rate based exertion program, meditation and chanting, and Restorative and Nidra yoga.

5.  I am still committed to finding a place in the Christian community.  I still think in Christian.  Christian metaphor still resonates in my soul in a way no other tradition's stories or vocabulary does.  I will never be a conventional Christian, being a heretic is as much a part of me as being a Christian, maybe more.  I am, however, determined to forge or find a space to bring together the ancient traditions of Christianity with modern applications. We needn't be syncretic with Buddhism or neopaganism (such syncretism isn't wrong but isn't necessary) to find meditation, magic, mysticism, contemplation, or apotheosis.

6. To that end, between relapses last year, I began facilitating a chant class at my yoga studio.  I had to drop it last spring but I hope to revive it locally and in person as my health permits, online in podcasts or Skype groups if it does not (and even if it does).  Ideally, I'd like to be able to facilitate chant groups in hospitals and VA centers for the very ill, the disabled, the traumatized.  I see its importance for spiritual healing far outweighing its utility for the trendy yoga studio seeker.

7.  My kids have grown up since my earlier writing.  I'm no longer homeschooling except in the most legal and supervisory definition.  My older daughter chose to attend public high school, graduated with honors and moved across the country to go to a private liberal arts college where she continues to swim competitively and aims eventually to physical therapy school.  My younger daughter attends community college and is dual enrolled at cosmetology school.  I still supervise her registration, sign her enrollment forms, and help as requested with papers (dyslexia is still a challenge), but I am no longer directly involved.  She's also been a professional actor for several years.  It still seems strange to think that what was such a huge part of my life is now over, but I also heave a sigh of relief to be finished.  I don't regret it for an instant--and, thankfully, neither of my kids does either--but it was a lot of work for which I'm glad no longer to be responsible.

8.  Due to injury and illness,  I can no longer read books.  At least 95% of my reading is through the Kindle app on my iPhone.  While I am deeply grateful to have that option, since I dislike audio books, I miss the smell, the look, the feel of holding a book in my hands.  I miss shopping at used bookstores and trolling library stacks.  And I really hate paying the digital prices for books.  I thought I spent a lot of money on books until I started buying ebooks at retail prices--criminey!

9.  Chronic illness is isolating and annihilating.  Even for persons not housebound or confined to bed as I usually am, illness forces an identity change.  It demands consideration of existential questions of meaning, individual value, community, and purpose. Whether one faces these questions head on or ducks continuously to the side of them, they change a person. Chronic illness means facing one's death in a society that spends a great deal of effort to deny death.

10.  Writing this post taxed me so much, I can't even think of a number ten.  I'll just hit publish and have a little lie-down.


Monday, November 16, 2015

Cast All Your Votes for Dancing


I know the voice of depression
Still calls to you.

I know those habits that can ruin your life
Still send their invitations.

...

Learn to recognize the counterfeit coins
That may buy you just a moment of pleasure,
But then drag you for days
Like a broken man
Behind a farting camel.

You are with the Friend now.
Learn what actions of yours ...
bring freedom
And Love.

...

O keep squeezing drops of the Sun
From your prayers and work and music
And from your companions’ beautiful laughter

And from the most insignificant movements
Of your own holy body.

Now, sweet one,
Be wise.
Cast all your votes for Dancing!

--Hafiz

A few weeks ago, I logged into the Chronicles to revisit the path I'd traveled and remind myself of the person I used to be.  I found this Hafiz poem I posted four years ago, the first summer I spent in my bed.  I've abridged it here from the version I previously quoted to highlight what sprang at me as I read again.  

After eight years of hysterical illness, four of them mostly in bed, I thought I would have learned to accommodate my disability, would have accepted the redrawn boundaries of my life. But the voice of depression still breathes her siren song from my own lungs, whispering seduction in my inner ear.

I still rebel against her, against my very frailty, by accepting that counterfeit coin, those invitations to indulge in habits of normal life so far beyond my capacity.  Make a pot of soup.  Shower and go to a therapy appointment in the same day. Have an argument. Simultaneously watch a documentary and knit a scarf. That's far more than a week's worth of energy.  

And then I'm dragging ass for days like a broken man behind the farting camel.  Life stinks. 

Because I have forgotten to indulge most in those actions that bring freedom and love.  Forgot that what I can still do is what is most valuable.  I can still pray. There is still music.  Sharing laughter with a child or a partner or a friend.  These are the coins of value in life.  With these coins, I buy freedom.  I can squeeze drops of the Sun, the source of life itself, from them.  

And I can even find life and freedom in the most insignificant movements that my body is still able to make.  I can still dance with life, with love.


Sunday, July 7, 2013

Trauma Therapy--Heavy Metal Style



A friend sent me a link to this song, thinking its story might find resonance with my story. He had no idea how right he was. Despite his trigger warning, I didn't expect how deeply into the buried recesses of my mind this song would reach.  I listened to it probably five times straight through before I could make myself quit hitting repeat.  Or, my hands were shaking so badly I couldn't press the button.  I didn't have the luxury of truly falling apart then. Ruthlessly shoving the response back into barely conscious places, I kept on with my week until I did have a few hours of uninterrupted time to allow the ripples of trauma to bubble up from their underground hiding places.

The migraines and gastric disruption that I had so recently learned how to (mostly) control came back and lingered despite my extra handfuls of pills.  Fatigue overtook me again no matter how early I went to bed.  Strange dreams echoed (barely) into my waking.  I needed to feel this song.  Hear this song.  Sing these lyrics. Scream these lyrics.

This song is mine, it owns me.  It cries the words I've never said, could never say.  It is the song of far too many, so many children grown to adult or even old age without the words to capture the ache in their souls. The smoldering coals of rage that lie waiting under the ashes of long burnt flame in so many hearts, branded on our bodies in chronic disease, mental disorder, addiction and social dysfunction.

This morning I put this video on constant replay for nearly two hours, until the shaking and nausea ended.  Even so, I was able to only barely more than whisper the words, though now they echo like a descant in the back of my mind. It still owns me.

I will sing this song, write this song, my story, until I own it.  Until I own it and can set it free.


Wednesday, October 31, 2012

A Haunting

Halloween. The veil between the worlds of spirit and body wavers and thins.  Knowledge and fear of knowledge, consciousness of The Unknown, are close at hand.  Ghosts walk, demons dance, all the skeletons in the closet rattle.  I am tense with horror at what I am about to call up, at my own deadly courage in facing the shade that hovers.   

A year ago, I was lying here in my bed, weeping again from exhaustion.  It was 7pm, the trick-or-treaters were in full parade.  One daughter was downstairs dispensing candy to the crowds and laughing with the neighbors; the other daughter pacing the floor, waiting for a ride to a party who never showed up. I was so tired, fatigued from my hysterical illness, the six weeks of continuous bleeding, the runaround in the health-care system.  I drove my daughter to her party, shaking like a palsied old woman.  Three hours from now, I was checking into the Emergency Hospital.

A year of doctors and tests that told no story, of healers and pills and therapies that dug new stories out of the depths of lost memory.  I lost forty pounds; it all found me again and brought extra.  I've been to a dozen doctors. I've consulted astrologers, psychics, and charlatans.  I've been hopeful and morose, resigned, and suicidal.  I spent thousands of dollars and hundreds of hours in analysis, diagnosis, meditation--scouring my case history for clues, making peace with skeletons in my past, finding skeletons lurking that I never suspected.

Last Christmas I lay in my bed, wishing I were dead.  Lent came around to find me hopeful of a resurrection into new life, a renewed spirit.  I wondered what would grow from my broken body and bruised heart.  Grace had cracked open my life, deeper than I imagined possible.  The self I laid down is dead; the self that rises now, I still don't recognize.

Not two weeks after my Lenten post, I lay on my healer's table, confronting my long-dead mother.  More than one of my sensitive friends told me that I had an attachment, that the ghosts of uneasy souls lay in my spirit.  My mother appeared to me with remorse, anxiety and longing.  Death had given her a new perspective of our lives.  She begged my forgiveness for her sins.  She warned me of demons hiding in my psyche.  She gave me few words but what she said turned everything I remembered of my childhood upside down.

It felt like my memories, and the meanings I attached to them, were a kaleidoscope, a familiar pattern of sights and sounds and feelings.  But Mom came and shifted the lens just a quarter turn.  All those  pieces suddenly fell into a different pattern with all new meaning.  Everything I thought I understood about myself, my childhood, my family was new.  I had stepped into a parallel universe, a Twilight Zone.

But how could these implications of my mother's words be true?  I had no recollection of anything that supported what she suggested that day. I was haunted now as I'd never been when her spirit had lingered.  I'd watched her fade into the light of my healer's window but I was burdened now with a new, terrible truth I couldn't accept.

My lack of confirmation weighed heavy, though the scars of the truth were now clear.  I felt like a physicist who hadn't seen the unknown planet but knew it had to exist because of its effects on nearby space were obvious.  Suddenly, the many questions through the years from psychologists and psychics weren't so absurd.  Perhaps the wounds they suggested had happened.

Then the memories began to leak out.  In dreams.  And flashbacks.  Glimpses of sights and sensations that had no context but I could feel them in my body, gagging me, tearing my most sensitive places, burning my belly, the gall strong.The demon danced always just out of sight, daring me to call him by name.

My body is the battleground of this fight to own my memories.  I was struck with Bell's palsy; I lost part of the vision in one eye, and have been tortured with pain that threatened to blast my brain out through the sutures of my skull bones.  The medicines and therapies prescribed to lessen the pain, served also to weaken my defenses that blocked these memories to begin with.  The more I mediate the pain, the more the demon dances and, by force of long and well-ingrained habit, I try to repress him.  I am about to start my third round of remedy/therapy combinations that will safely exorcise this evil from me.

I long to name this demon with confidence.  Fetch him to dance to my tune.  Tame him to work for me in healing, not destroy me.  As I write, a muscle under my eye is twitching, my whole body aches in a permanent flinch, the frozen trauma caught in the muscle memory I can't yet allow fully into consciousness.  

Tonight I step into the circle, howling my terror, singing my strength, this demon is mine.  Bring to consciousness the fears and the memories that terrify. While the veil to the unconscious is thin and shifting, when the power of those saints who passed before us lingers close, I invoke Grace.  The demon Grace who dances, not to terrify but to save me from what I could not be permitted to see.  Grace, whose blindness now will be sight, I call you to transmute from fear to love, no longer Death but Life.  

Tomorrow, I go to a Franciscan labyrinth to honor All Saints Day/Dia de los Muertes.  I will walk into the path as to the grave, to bury my fears and traumas.  The dreams and knowings I call forth tonight will go with me tomorrow into the labyrinth. I will bring the demon fears with me, but in the holy center space where grace happens, he will be no demon to me. When I come out, it will be wisdom that walks with me.  

Thursday, October 25, 2012

10 Things on Thursday

Ten Things I'm Afraid Of:


1. I'm afraid that I will be regarded as a dilettante blogger because I don't blog every day. But I'm afraid if I blog everyday, I will end up with mostly frivolous posts.

2. I am afraid of being Stoopid. My hysterical illness has mucked up so much of my executive functioning that I am just a dingbat all too often. I'm afraid that my hysterical illness has stolen so much of my brain that I won't ever be able to write consistently and reliably, that I won't be able to "just show up" to my writing.

3. I am afraid i will lose my mind altogether. I hate that I can't be counted on to organize the family's finances or even the grocery lists with any certainty.

4. I am afraid that I won't provide my kids with the social skills and education that they deserve. I am afraid that my own disabilities will create disabilities in them. I'm afraid that I did them a disservice by homeschooling.

5. I'm afraid I've wasted my intelligence on fundamentalist thinking and haven't got anything left now that I'm not a fundamentalist anymore.

6. I'm afraid that the best thing anyone will be able to say about me at my funeral is that "she loved her kids". But I hate that I can't see loving my kids as a valuable accomplishment.

7. I am afraid of dying before I'm fifty (like my mother). I am also afraid of being old before my time.

8. I am afraid that I will let the limitations of my hysterical illness hold me back as much as I let fundamentalist thinking and religious addiction limit me.

9. I am afraid that I make no difference in my world.

10. I am afraid of fear.

Thursday, October 18, 2012

Vanity of Vanities


 I am poured out like water, and all my bones are out of joint: my heart is like wax; it is melted in the midst of my bowels.  My strength is dried up like a potsherd; and my tongue cleaveth to my jaws; and thou hast brought me into the dust of death. Psalm 22:14-15
 
My soul is weary of my life; I will leave my complaint upon myself; I will speak in the bitterness of my soul.  Job 10:1

It seems my whole life I have been finding myself in the Scriptures.  The psalmists, the prophets, they knew my aching fatigue, my soul-deep exhaustion. I have carried agony in my heart long before the pain in my body caught up to me in middle-age.  These poets and preachers felt the longings of my heart from my earliest years.  They gave consolation that I am not alone in crying out for relief.

Come unto me, all ye that labour and are heavy laden, and I will give you rest. Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls. Matthew 11:28-29He giveth power to the faint; and to them that have no might he increaseth strength.  Even the youths shall faint and be weary, and the young men shall utterly fall: But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.  Isaiah 40:29-31
The same Scriptures gave me consolation that relief was possible, that God wanted to give me strength and rest.  If only I took his “yoke and learned of” him, then I too could run and fly and rejoice.  For at least thirty years, I have sought nothing more.  Yet, still I lie on my bed and sigh.  I am simply too tired to weep.

I have read the Bible and I have prayed.  I have “waited on the Lord”.  I have sought the wisdom of the medical industry and the healers.  I have taken pills; I have changed my diet and my habits.  I have analyzed my psyche and shamanically “released my attachments”.  I have begged for death.  I have begged for new life.  I have found neither.  I quit begging and tried to “screw my courage to the sticking-place” and “just do it”.

Everyone from the Old Testament prophets to the New Age healers, from Shakespeare to Nike ads, the pill-pushers to the diet-pushers to the snake-oil sellers, all promise salvation.

I have seen all the works that are done under the sun; and, behold, all is vanity and vexation of spirit.  That which is crooked cannot be made straight: and that which is wanting cannot be numbered.  I communed with mine own heart, saying, Lo, I am come to great estate, and have gotten more wisdom than all they that have been before me in Jerusalem: yea, my heart had great experience of wisdom and knowledge.  And I gave my heart to know wisdom, and to know madness and folly: I perceived that this also is vexation of spirit.  Ecclesiastes 1:14-17

Monday, October 8, 2012

Demons Guard the Door

The demons are duking it out in my head tonight. A migraine is squeezing my eyeballs and pounding the walls of my brain. I have felt a duel of some proportion coming on for a few days. At first I thought it was some kind of sinus infection resulting from that cold and small fever I was fighting. But then I realized the militant action was amping up every time I gave thought to the latest series of half-remembered dreams I've been having.

Some months ago, in an NAET session with my healing dude, I experienced the first awareness of a whole mess of memories being repressed. All progress on my recovery, physical and spiritual, came to a screeching halt. Minuscule glimpses have leaked through to my consciousness, always at great cost in emotional and physical pain. My psyche has gone to great lengths to lock these memories away so that I could survive and doesn't relinquish custody of them lightly.

I've been dreaming again of things I could never admit--to myself, much less to anyone else. The dreams are wrapped in the coded language of the unconscious and even so I only remember fleeting images upon awaking. But my body remembers.

All of me aches with the desire to acknowledge the memories. Yet my muscles clench tight in a permanent flinch that forces the horrors out of sight. The battle between being safe and being free rages in my very tissues. My brain throbs. My belly heaves. My innermost parts burn with exquisite agony of knowledge that cannot be spoken.

The skeletons in my closet rattle and writhe. I long to teach them to dance. But they do not respond to my direction for I know not their name. The demons at the door, charged with my survival, won't let me in. They fight me with all the ferocity of the cornered animal I once was.






Wednesday, October 3, 2012

Self-Denial


[comment] ...what I am seeing in facilitating of the [Sunday School] classes on Buddhism, as well as the ongoing study of Ephesians, is that they are both saying the same thing: life here hurts, but it is possible to some extent to transcend the pain (dukkha) of this life and find enlightenment and freedom, even while enduring the pain.  From what I see from the Buddha, the pain is intensified as we focus on ourselves (tanha), but it dissipates as we—to use Christ’s term—deny ourselves (anatta), a concept that is not easy to explain; I’m not sure what “no self” (the usual translation of anatta) means.
               We talked in the Ephesians class yesterday about the martyrs, who were burned at the stake, and sang hymns until they could no longer breathe.  Sure, they were in severe pain, but there was something else going on for these mystic martyrs. 
               Well, I did not mean to preach [about your ongoing chronic illness], and I don’t intend that you say, “Aha, that’s what it’s all about!”  These thoughts are nothing new to you; you undoubtedly know more about them than I do.  I relate them simply because I was reminded of the tie-in. 

Illness pulls one’s focus inward.  Anyone with a sick child, or the stereotypical sick husband, knows that there is nothing like illness to make a person self-centered, completely uncaring about anything other than the miserable experience in his own body.  One of the first signs of recovery in acute disease is when the patient’s attention turns again outward.  A minor illness makes people cranky, a more serious one takes them right past cranky into sullen and distant, turned so inward that all interventions are mere nuisance.  As healing happens and the patient returns to an outward enough consciousness to be a grouch, the nursing staff breathes a sigh of relief (at least initially).  And as recuperation continues, the child once again clamors out of bed to run and play, the husband heads back to work—both a return to the outer world.

We are at ease when our Selves are able to expand into community.  Dis-ease occurs when we are contracted too far into our individual existence.  Religions of all kinds tell us that spiritual health is when we can expand our self so far outward that we merge with the community—when we lose the self to gain Christ, or attain the No Self.  We all live on this continuum of individual ego, moving from points of solidified ego consciousness, selfishness, complete inward focus, to points of community, spiritual unity, dissolution of ego consciousness, and back.  It is a dynamic continuum and we are always shifting our position.

Like all continua, the endpoints are not opposites but meet up as in a circle.  One can lose ego boundaries in pathology, just as one can look inward beyond the Self to find a Higher Consciousness.  In an unexpected turn of the wheel, this hysterical illness of mine has served to bring me from a place of ignorant spiritual disease to a place of greater spiritual health.  Although I thought I was psychologically healthy, spiritual aware, before the onset of this illness, actually I was lost.  Lost in externals, my boundaries defined not by a healthy ego but by demands from society, ideology, family, I participated in the rat race of parenting, homeschooling, career planning, never realizing that my actions were dictated by influences outside my Self.  I lost myself in trying to be the best crunchy granola mom in the homeschool group.  I defined myself by how well I followed all the rules—eating the most organic, local foods, buying only natural hand-made toys, making my own medicines and condiments and cheese (okay, I really failed at cheese)—rather than by internal standards of compassion and grace.  Everything I did, no matter how well intentioned I had thought it, happened because I sacrificed myself to my family’s perfection.  My own boundaries were much too porous; I didn’t know where the external demands of family and culture stopped and I began.  I identified myself by my ability to exist for others. It was a pathological lack of ego structure.

And I burnt out.  My adrenals quit supporting all the demands I put on myself.  For two years, I was crazy, neurotic, more than a little psychotic at times.  I lost even the illusion that I had a Self.  In moments of lucidity, I found a name for this physiology—hypoadrenia, probably Addison’s disease if I’d found a doctor who took me seriously enough to test it back then—and worked very hard at recovery. 

I was pretty successful. I got healthy enough to think about employment, or maybe taking up my education again.  But I had only addressed the physiology of my disease.  I was still identifying myself by what I could do—become a doctor, homeschool my kids, cook a damn fine meal—rather than what I was.  My Self was still lost, dissolved in the expectations from family and culture.

Regaining a healthy Self required me to pull inward, define myself by internal standards, even develop those standards by which to define myself.  Illness demanded that I look inward.  Particularly illness that didn’t go away.  I couldn’t simply grit my way to the end, wait out the fever or the cough—though I tried to “just hang on”.  As month after month became year after year, and I could do less and less of the work that I took such enjoyment (and pride and identity) from, I have been forced to reconsider my boundaries.  As I have to tell my kids, myself, “no” again and again for even the most commonplace of demands—grocery shopping, staying functional through a whole play or swim meet, snuggling on the couch—I learned that my Self is not defined by these things.  My Self, I, am stronger and steadier, more secure, now in this chronic debilitation than I ever was in my “healthy” before-illness state. Even in my bitchy, bitter, weariness.

Is this the grace? The transformation of the mud into the flesh that holds Life?  The breath that gives life, that sings through death?

Monday, September 3, 2012

A Note to a Friend


 My overall reaction to my trip to see you last week is centered around the fact that you moved from your bed to my car to the restaurant and back again.  You had said how tired and lethargic you were when we have "talked" by e-mail, but to observe your lack of energy showed me how devastating and debilitating it has become for you.

Yep, bed…that’s pretty much where I’ve lived for the last 14 months.  I get up to go to coffee or the doctor or to drive the kids to something and go right back to laying on the bed.  Even hanging out on the couch has become too much since I have to argue for the space where I can stretch out and rest my head, fight with the family over light/noise/choice of television programming/clutter/dust-pet-hair, and so on.  My bed has become my sanctuary and my prison. 

My internet connection is my window to the world; Facebook is my social arena.  I can choose when and how I converse or if. When it gets too much, I can just not participate and it’s okay. For a month or so in January/February, I had a few really marvelous weeks when I was able to shop and cook and feel like a real human being not just play one on the internet.  But then in March I had some psychological stuff happen in an NAET session that really walloped me and it has been a loooong slow road back again.  In just about every possible way, I feel as sick as I was in December.  And that was really bad! 

 I pray you will find whatever it is—physically, psychologically, spiritually—that is getting the best of you; or that with or without that knowledge, you will find the means (homeopathic or otherwise, by yourself or with the help of professionals) to overcome what's been ailing you.  I sense that there must be an answer to this thing, and that you or someone else will be able to find it.  (Whatever you do, don't give up.) 

My healing partner says I can’t give up—as in suicide—because the curse of my condition is that it would take more energy than I have to kill myself.  Sigh.  Yeah.   More often than I can count, I’ve prayed for the energy to die.  Because living so isolated from anyone who actually believes I am sick and not just lazy crazy or stupid, so incapable of doing anything that makes me feel alive, so fucking tired in body, mind, and spirit, is not a life worth living. 

I know I have a purpose, a mission from God, but I feel much like Moses.  …it was Moses? Not Aaron?  Who had the speech impediment and felt unqualified to speak for God?  … I have this mission, and I even know what it is, but my self understanding is so lame, I cannot (will not) see that I can do the work.  And the harder I try, the less I can do.  My brain simply stalls as soon as I begin to think maybe I can do this. 

And, sure, there is that faith thing. If God has given you a task, he will surely equip you for it, right? So I must simply be faithful to the mission, fidelity is everything.  Except I can’t.  I literally lay here with my fingers poised over the keyboard and my mind freezes up—I can’t remember a single thing to write, I lose my words so badly I can’t complete a sentence even when I can remember my theme. Or I simply wear out and can’t even muster the physical energy to pull the laptop open on my belly here in bed.  

Lord, I believe, help thou mine unbelief.